Eleanor Lisney, on being a disabled human rights activist
《Eleanor Lisney,殘疾人權倡議者》
殘疾人驕傲月(Disability Pride Month)對我來說是一個新概念。我發現這概念源自美國,與1990年代的美國殘疾人法案(American Disability Act,ADA)同時出現,但當時並不廣為人所知。英國在2002年有殘疾人歧視法(Disability Discrimination Act,DDA)。當我在德州奧斯汀得知這件事時,我獨自慶祝過。我當時想,該回英國了。這法案後來被2010年平等法(Equality Act 2010)取代。即使時至今天,仍有人會說某個場所符合 DDA 標準!
但這對我來說有什麼意義呢?這應該是讓殘疾人有機會聚在一起,慶祝活得自在和多元,並提高大家對我們每天所面對的挑戰和障礙的意識。然而,我並不覺得我需要一個特別的月份來做到這些。就像我有些朋友對黑人歷史月(Black History Month)或國際婦女節(International Women’s Day)的感覺一樣。
作為少數群體,我們每天面對不同的歧視,而殘疾只是其中之一。作為一名東亞及東南亞(East and South East Asian,ESEA)殘疾女性,我還會被其他ESEA人因為殘疾而歧視。當你在一個場合中意識到你自己因為被認為不值得交往,而被自己社區的人忽視的時候,那是最令人沮喪的。
然而,我很高興地說,隨著ESEA社區壯大,我現在與那些更具包容性和意識到包容性重要性的人有聯繫。所以我為自己作為一名活躍分子而自豪,作為一名可見的且推動社會意識的殘疾活躍分子而自豪。以前我在殘疾倡議工作主要聚焦在人權、無障礙合規審查,以及殘疾權利和婦女權利這些方面。我現在意識到,我有多重身份互相交織,而當中許多都是被邊緣化的身份。
現在,隨著巴黎奧運會的到來,我想起了2012年我當火炬手的回憶。一位年輕的泰國女孩在考文垂(Coventry)市場上前來找我,說她很高興看到我,因為我是唯一的ESEA代表。我想,我媽媽也會是這樣想。她從不知道我作為殘疾平權活躍分子所做的事(她當時在馬來西亞),但她知道甚麼是倫敦奧運會,她還特意飛過來參加那次盛事。
***
EVR(全稱 End Violence and Racism Against ESEA Communities)是一間提供反對種族主義心理健康服務的機構,透過免費治療、社區活動、為其他服務提供者和公司提供文化能力(cultural competence)培訓,以及為國際留學生提供友伴計劃,去支援東亞和東南亞(East and South East Asian,ESEA)社區。EVR 也是「On Your Side」項目的九個合作夥伴之一!
「除了在 EVR 和 Disability Arts Online 董事會的職責外,Eleanor Lisney(she/they,她/他們)還是一位倡議者、公開演說家、無障礙顧問,以及兩個非常出眾的組織 —— Sisters of Frida 和 Culture Access 的聯合創辦人/總監。然而,他們(這裡英語原文的 they 是用作描述非二元性別的單數用法)首先更會描述自己為一名人權倡議者。」
Eleanor Lisney, on being a disabled human rights activist
Disability Pride Month is a new concept for me. I found out that it came from the USA – coinciding with the American Disability Act (ADA) in the 1990’s – but it was not well known. The UK had the Disability Discrimination Act (DDA) in 2002. I remember celebrating on my own in Austin, Texas when I found out about it. Time to return to the UK, I had thought. This was replaced by the Equality Act 2010. There are people who would still say a venue is DDA compliant to this day!
But what meaning does it hold for me? It is meant to be a chance for disabled people to come together and celebrate being ourselves, in our diversity, and raise awareness of the challenges and barriers we face every day. However, I do not feel I need a special month to do this. Just like my friends with Black History Month. Or International Women’s Day.
As minoritised communities, we face different discriminations daily – and disability adds to the list. As an ESEA disabled woman, I get discriminated against by other ESEA people for being disabled. There is nothing more disheartening than being in a room to network, when you realise that you’re being ignored by your own community because they do not see you as worthy of networking with.
However, I am glad to say, as ESEA communities get stronger, I am now in touch with those who are more inclusive and aware of the importance of being inclusive. So if nothing else, I am proud of being an activist – and a visibly disabled activist – who helps that journey towards awareness. My main focus in disability work previously has really been in human rights, and access compliance, and things like disability rights and women’s rights. I now realise I have multiple identities that intersect with one another, and many of those are marginalised identities as well.
In this current time, with the Olympics in Paris, I suppose I’m reminded of the time I was a torch bearer in 2012. A young Thai girl approached me in Coventry Market, saying how pleased she was for me there because I was the only ESEA representative. I think that goes for my mum too. She never knew what I did as a disability equality activist (she was back in Malaysia) but she knew about the Olympics, and she flew over for the event.
***
Beyond her duties on the Boards of EVR and Disability Arts Online, Eleanor Lisney (she/they) is a campaigner, public speaker, access advisor, and co-founder/director of two incredible organisations – Sisters of Frida, and Culture Access. First and foremost however, they describe themselves as a human rights activist.
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